Today's doctor visit went fairly well. Lily's blood counts were still pretty good, although her hemoglobin was low. The doctor said if this continues to drop, they will want to do a blood transfusion. She also lost almost 3 pounds since last week; a lot for someone already so thin.
Today Lily had the chemotherapy called Vincristine, this is what caused her to have nerve pain in her jaw and mouth last week and numbness in her hands and feet. Hopefully these side effects don't continue or get any worse. She is feeling good right now; she had a big dinner and is laughing at Sponge Bob. We are so looking forward to no doctor visits all week.
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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.
2 comments:
Alisha, Phillip, Jacob and Lily,
We love you all and are grateful for this blog. We haven't wanted to call and bother you but you have been in our prayers and have fasted and prayed for all of your strength.
Dancing in the rain is a way of life and as the rain falls it wash's us clean from the things that don't matter, isn't that right?
All of your names are being prayed for in the Temple by all those who enter that Holy place.
May the spirit be with you every moment of every day to bring you Peace. Don and Jane
I love you guys. <3
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