HopeKids is a great organization that plans fun FREE events for children with life threatening illnesses and their families. It gives these kids a chance to experience things they may not otherwise be able to.
Through HopeKids, Lily was able to go to a Suns game and meet the team. She also went to the ballet to see Sleeping Beauty. We would love to attend more events in the future with HopeKids, and need your support!
Our family will be walking in the HopeWalk, a 5K to raise money for HopeKids.
Go to our page to join Team Lily Love:
http://www.firstgiving.com/fundraiser/alicialopez/3rdannualhopewalk-5kfamilywalkathon
Hopefully we can get a big group to walk with us. This will be fun!
Pages
On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.
Wednesday, August 17, 2011
Saturday, August 13, 2011
We've been so busy lately!
Last week Lily had chemo Monday and Tuesday and you would think she would be too tired and sick to do much afterwards, but surprisingly, very little slows her down these days. She stayed busy hanging out with friends, swimming, and last Saturday we had the clothing drive and John & Jen's anniversary celebration.
Lily had so much fun at the anniversary dinner and afterwards swimming in the hotel's pool. Everyone was so happy to see her there, full of energy, and having such a good time.
This week she only had chemo on Monday, but her blood counts dropped from the previous week's chemo, so she had a blood transfusion on Wednesday and what feels like endless Neupogen shots to bring her counts back up.
Tuesday was grandma's birthday. We had a birthday fiesta at our house:
Last week Lily had chemo Monday and Tuesday and you would think she would be too tired and sick to do much afterwards, but surprisingly, very little slows her down these days. She stayed busy hanging out with friends, swimming, and last Saturday we had the clothing drive and John & Jen's anniversary celebration.
Lily had so much fun at the anniversary dinner and afterwards swimming in the hotel's pool. Everyone was so happy to see her there, full of energy, and having such a good time.
This week she only had chemo on Monday, but her blood counts dropped from the previous week's chemo, so she had a blood transfusion on Wednesday and what feels like endless Neupogen shots to bring her counts back up.
Tuesday was grandma's birthday. We had a birthday fiesta at our house:
Thursday we decided to start building a chicken coop (Thank you Marcus for inspiring us):
And Friday we had another tea party with one of our favorite fellow tea partiers, the Lovely Lacey :)
Next week will be a long chemo week. Lily will be getting chemotherapy everyday, Monday- Friday, with the home hydration pack every night.
A Huge Thank You!!
Thanks so much to everyone who donated at the clothing drive last weekend. It was a huge success!! A ton of clothes were donated. So much so that even after a great turn out with lots of shopping, we had two trucks full of clothes to give to Desert Industries.
We also really appreciate all the hard work that went into getting everything set up and ready to go. Thank you to all those that helped! And a extra big thanks to Cami, who planned it all.
We also really appreciate all the hard work that went into getting everything set up and ready to go. Thank you to all those that helped! And a extra big thanks to Cami, who planned it all.
Subscribe to:
Posts (Atom)