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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Sunday, January 23, 2011

One Day at a Time

Life isn't about waiting for the storm to pass; it's about learning how to dance in the rain

Every since Lily was admitted into the hospital and we knew something was seriously wrong, we have had to take things moment by moment and day by day.  It was far too terrifying to imagine things that might or might not happen in the future.  I wasn't surprised that this seemed to come naturally for Lily, but I was surprised at my own ability to do so.  
Taking each moment as it comes was a lesson hard, but well learned. It may seem difficult to find moments of joy while cooped up in a hospital for days on end where fear and worry are constant companions, but they are there if one looks.  Just being close to my sweet little angel and spending time with her; holding her, brushing her hair, rubbing her back and making her smile are enough. I appreciate every minute I have her with me.
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