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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Sunday, October 23, 2011

Go Team Lily!

It was a warm day today for the Hope Walk, but Team Lily was up bright and early and ready to walk to help raise money for Hope Kids. We had a great time! Thank you so much to everyone who came out to support Lily and this great cause!




Team Lily Rocks!

Peace!

We love Lil!



Go Lily!

Saturday, October 22, 2011

Hope Walk Tomorrow!

Here's the info on the walk:


http://www.hopewalkaz.com/?page_id=2

We plan on getting there around 8:00 a.m. See you there!

Wednesday, October 12, 2011

Lily Art
















Sunday, October 9, 2011

Saturday, October 15th I will be running in the Grand Canyon University Run to Fight Children's Cancer. Proceeds from the race will go to the Children's Cancer Network, a charity that helps support Arizona families that have children with cancer. Anyone who wants to join me is more than welcome! Here is the link: http://www.gcuraceseries.com/index.php

Since I am just getting back into running (lack of time and extreme heat have been my biggest determent) I will only be running the 5K.   Now that the weather is nicer (one less excuse!), my goal is to return to my old running self :)

The past month the mornings have been cool enough for Phillip and I to enjoy our weekly hikes in the desert. I'm looking forward to the day when Lily will be strong enough to join us again. She always was a super hiker.

Sunday, October 23rd is the Hope Walk. Lily will be there for this one, along with family and friends. Please let me know if you want to be added to Team Lily Love! We are going to have shirts made for our team so I also need shirt sizes.
About Hope Walk: http://www.firstgiving.com/fundraiser/alicialopez/3rdannualhopewalk-5kfamilywalkathon

Thursday, October 6, 2011

This morning Lily had her bone marrow biopsy and the procedure went well. We were there bright and early- 7 am is way early for Lily these days- but what a beautiful morning it was! Our frequent drives to the East Valley PCH are often filled with worry and sometimes even dread, but a clear day, green fields and beautiful views are always something to be thankful for. Getting a good glimpse of Four Peaks and the Superstition Mountains help to bring my stress level down a few degrees. Not to mention a cool breeze and the smell of rain!

Although she didn't say so, I knew Lily was nervous about the procedure (who wouldn't be?).  But she was my strong brave girl as usual. We were with her until she went to sleep and then the procedure only took about 15 minutes. It took her longer than that to wake up from the anesthesia, but the nurse said she must have been having a good dream because she woke up laughing. Afterwards she was weak and shaky but in good spirits. Because it was cool outside, the nurse let her choose from some beautiful afghans that someone had crocheted and donated to the hospital. Lily was super happy to find a small baby blanket perfect for the baby doll that she recently made.

As soon as she got home, she was hungry and requested stir fry with noodles. Kind of a weird breakfast since it was 9 am, but who am I to argue? I was just glad she felt like eating. Afterwards, we cuddled up in bed and watched The Far Pavilions.

Right now she is sore, but feeling good otherwise. As usual, she's got the music blaring and is creating her fabulous artwork.

We will learn the results of the biopsy next week. Lily has chemo on Monday, but then has two weeks off.

The gift of the donated afghan has inspired me. I've decided that I'm going to crochet a bunch of hats and donate them. I would do blankets, but I have a feeling it would take more time and patience than I have. However, anyone who knows about my addiction to crochet also knows that I jump at the opportunity to purchase new yarn and try a new pattern. Luckily I've got about 10 new hat patterns I want to try! I've also got a few hats that I've already crocheted that Lily won't wear apparently due to the fact that they are "too girly."

Phillip only has one day of work left until he is laid off. I'm not sure if the full reality of this has hit us yet, but right now we both feel confident that he will find work fairly quickly. Until then, I've got a Honey-Do list a mile long. Anyone who wants to add to it, feel free :) He'll love me for saying that!

Wednesday, October 5, 2011

Lily will be going in for a bone marrow biopsy and aspiration this Thursday. This is a quick procedure, but it will be done under general anesthesia and she will be sore afterward. She had it done in the hospital when she was first diagnosed, so we know what to expect. The procedure will allow doctors to evaluate her bone marrow to determine if it has returned to normal.

As usual, I'm more nervous than she is. Luckily I'm off from work Thursday and Friday for fall break, and hopefully the painful side effects of the procedure won't last too long.