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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Wednesday, January 26, 2011

So much for no more doctor visits this week! We spent the afternoon at the clinic today because Lily has been sick to her stomach, weak and not eating.  They gave her some fluids and anti-nausea medicine through her port IV and got her set up for a blood transfusion tomorrow morning.  I'm feeling pretty nervous about the whole transfusion thing but I'm also hoping that it will help her feel better.  She may have more energy and be less lightheaded once we get her hemoglobin counts up.

Phil and I also talked to the naturopathic doctor today. Unfortunately, our insurance does not pay for any alternative medicines, but we feel like it is really important to try to support Lily's immune system while she is going through chemotherapy, especially with her not eating well.

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