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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Thursday, June 2, 2011

So much for Lily feeling well. She was up all last night with stomach pain and vomiting. We rushed to the clinic first thing in the morning so that she could get medicine for her pain and nausea and fluids through her port. She felt better afterwards, but hasn't wanted to eat much today. Poor girl. We've got two more days of this.
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2 comments:

JANE said...

HI LILY, WE MISSED YOU AT PAPA JONES REMEMBRANCE NUT I'M GOING TO SEND SOME PICTURES TO YOU SO YOU CAN BE APART OF IT ALL. AUNT CARLA TOOK SOME PICTURE AND POSTED THEM ON FACEBOOK SO YOU MAY WANT TO LOOK AT THOSE TOO.
I LOVE YOUR DOLL HOUSE, ESPECIALLY THE COLOR. CAN I COME OVER SOMETIME AND PLAY THE GUITAR AND SING WITH YOU? MAYBE EVEN TEACH YOU A LITTLE GUITAR TO PASS THE TIME? HAVE MAMA LET ME KNOW. I'D LOVE TO SEE YOU. - LOVE AUNT JANE

June 10, 2011 at 5:33 PM
alicia said...

Hi Jane, thanks for the pictures and the video. We would love to have a visit and hear your lovely voice.

June 25, 2011 at 11:20 AM

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