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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Saturday, June 25, 2011

It's been a long week for Lily with chemo and radiation treatments every day, but thankfully she is doing well so far. Her appetite and energy have been relatively good all week.

She was so happy for the weekend, though- no doctor visits and her port de-accessed. When Lily's port is accessed, it's uncomfortable and she has to make sure she doesn't get it wet. With it finally out after the whole week, the first thing she did when she got home was go swimming with our neighbors. Then she had a sleepover with her cousin. Tomorrow will be more swimming at Jessy's house.

Next week Lily has only one day of chemo and the following week she gets a break from chemotherapy completely. Radiation will still continue for the next few weeks, however.

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