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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Wednesday, February 16, 2011

I haven't wrote for a while, partly because I've been so busy but also because I felt like I didn't have anything good to say. Last week was rough. With chemo everyday, Lily was feeling very unwell and on top of that, her spirits were low. She was feeling sad and I can't blame her. She has been through so much, and because she has been so sick, she hasn't had much time to grieve. 

This week, however, she is finally feeling better! She still has occasional bouts of nausea, etc, but overall she is much improved. She only had a half  dose of Vincristine on Monday and on Tuesday and Wednesday she visited the naturopathic doctor. He gave her vitamins and amino acids through her port IV. Afterwards, she seemed to have much more energy. She has been up walking around and Wednesday was finally willing to leave the house for something other than the doctor. We went to Grandpa's birthday dinner. Everyone was so happy to see our Lil more like herself. She was excited to wear something other than pajama pants and we realized that the last time she put shoes on was the night we went to the hospital a month and a half ago!

On our way to Grandpa's house and not (!) in a wheelchair
Our goals for the rest of the week are:
A) Go nowhere near a doctor's office
B) Sew some fabulous renaissance garb because Renaissance Festival here we come
C) Eat
D) Eat some more

4 comments:

Megan said...

i LOVE that hat! it was sooo good seeing her out and about. :) you too! i love you <3

JANE said...

IT IS SO GOOD TO SEE YOU UP AND ON YOUR FEET LILY.
wE SEND YOU AND YOUR FAMILY ALOT OF LOVE.

Grandma, Denice said...

Papa said, having lil at his party was the best birthday present he has ever had!

Hope said...

Love your cute outfit and your fabulous hat! My grandma and I make hats for my little brother. It's good to see you are feeling well enough to enjoy your family. Still praying for you!!!