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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Friday, March 2, 2012

Marvelous March: Exciting Adventures Await

Today the PCH clinic had an end of treatment party for Lily.

This is how excited she was:

Hooray! No more chemo!


Lily is also looking forward to being in the fashion show this weekend and next weekend she goes on her ski trip to Aspen, Colorado with the Shining Stars Foundation. This trip is going to be an amazing experience for her. She will be gone 8 days and will have daily one on one ski instruction and lots of fun activities.

And to top it all off, Make a Wish Foundation is going to grant Lily a wish!!

Her wish?

To have her own private Victorian cottage playhouse/ art studio in our backyard!

This is is sort of what she is envisioning. Source: The New York Times

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