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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Thursday, March 1, 2012

Lily's MRI and PET scan did not indicate the presence of any cancer in her body!!

Her doctor's appointment to review the results isn't until Friday but I couldn't wait that long-- I called the doctor the day after her scans and he confirmed that she is in remission and that as long as her scans continue to look good, she is done with treatment.

So although this is her second negative scan, we are doubly excited because Lily is not only in remission, she is finished with her year long intensive chemotherapy treatment!!

This is truly an amazing miracle and we are incredibly grateful that things have gone so well. It's been a tough year and Lily has had to be so strong through it all. She is certainly proof of the power of love and positive thinking!

Lily has never once doubted that she would get better and through all the many, many chemotherapy and radiation treatments, she never lost her focus. No matter how sick she felt, she simply accepted it all with the grace that only a child could have.

For us, this was important. There was no anger toward the cancer. For us, this was not a "fight" or a "battle" to be "won" or "lost." Although I think many people like to use that metaphor, we do not. For us, it is a matter of accepting what is, dealing with it, and moving on. I learned how to do this from Lily. When Lily first got sick, I remember saying, "Life is hard enough without cancer." This past year has taught me that it's all in your perception. Life is only as hard as you make it. A heart full of love and gratitude is the best antidote to a mind full of doubt and worry.

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