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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Wednesday, September 7, 2011

Lily has been fighting a horrible cough and congestion the last few weeks and even ran a low grade fever this past week. Her white blood counts were extremely high due to the daily Neupogen shots I had to give her. When they are high like that, she feels sick and achy.

This week, even though we continued the shots, her white counts came crashing down because of the chemo. Her hemoglobin and platelets were also low, which makes her feel weak, tired and headachy, so today she had a blood transfusion. Although she has had several transfusions of hemoglobin, today was the first time that she needed a transfusion of platelets and she ended up having an allergic reaction with hives and itching. Today was also the first time I wasn't at the clinic with Lily during a blood transfusion.

I am so thankful to my mom for volunteering to go with her, as I had a lot of work I needed to do. It was a long day for them both- 6 hours! Thank you momma.

Today's transfusion should help Lily feel better and she has next week off from chemo for evaluations.

2 comments:

cr said...

You have an excellent support system...Know that we are ALL here for you any way that you need us..we are always just a phone call away...

alicia said...

Thank you! We are so blessed by all the love :) love and miss you.