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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Friday, May 13, 2011

Happy Friday

Yipeee! It's Friday and we made it through the week! Lily has been feeling much better the last few days and now has a couple weeks off from chemo. We have a few fun things planned for the upcoming week, but mostly we will just stay at home and relax. Lily's blood counts will likely drop next week and we have an appointment scheduled for Wednesday to get blood work done.

The date for her MRI is May 23rd and she will have a PET scan, echo and EKG on May 25th.
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