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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Thursday, April 28, 2011

I knew something was going on yesterday! Lily ran a fever all last night. Neither one of us got much sleep, but Lily is feeling a bit better this morning. She didn't have any chemo last week and her blood counts have not yet dropped from this week's chemo, so a fever right now isn't as dangerous as it might otherwise be.
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