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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Wednesday, October 5, 2011

Lily will be going in for a bone marrow biopsy and aspiration this Thursday. This is a quick procedure, but it will be done under general anesthesia and she will be sore afterward. She had it done in the hospital when she was first diagnosed, so we know what to expect. The procedure will allow doctors to evaluate her bone marrow to determine if it has returned to normal.

As usual, I'm more nervous than she is. Luckily I'm off from work Thursday and Friday for fall break, and hopefully the painful side effects of the procedure won't last too long.

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