Lily Love

On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Saturday, August 13, 2011

We've been so busy lately!

Last week Lily had chemo Monday and Tuesday and you would think she would be too tired and sick to do much afterwards, but surprisingly, very little slows her down these days. She stayed busy hanging out with friends, swimming, and last Saturday we had the clothing drive and John & Jen's anniversary celebration.

Lily had so much fun at the anniversary dinner and afterwards swimming in the hotel's pool. Everyone was so happy to see her there, full of energy, and having such a good time.

This week she only had chemo on Monday, but her blood counts dropped from the previous week's chemo, so she had a blood transfusion on Wednesday and what feels like endless Neupogen shots to bring her counts back up.

Tuesday was grandma's birthday. We had a birthday fiesta at our house:

Thursday we decided to start building a chicken coop (Thank you Marcus for inspiring us):

And Friday we had another tea party with one of our favorite fellow tea partiers, the Lovely Lacey :)

Next week will be a long chemo week. Lily will be getting chemotherapy everyday, Monday- Friday, with the home hydration pack every night.

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