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On January 5th, 2011, Lily was admitted to the Phoenix Children's Hospital because she was experiencing pain in her legs and back. A week later and after what felt like a million tests, scans and biopsies, we had a diagnosis: she has a soft tissue tumor called Alveolar Rhabdomyosarcoma. A PET scan revealed a small tumor in her foot that was not apparent from the outside; it was not until the cancer had already spread to her bone marrow that she experienced any symptoms. This came as a total shock to everyone as Lily has always been healthy, active and full of energy. We love our darling girl and her sweet, happy, loving spirit. This website is for friends and family to stay connected during this difficult time.

Wednesday, July 6, 2011

Beads of Courage

Lily with her beads of courage.

Each time Lily has a procedure such as a chemo infusion, radiation treatment or blood transfusion, she receives a bead to string on a necklace. She also has beads for hospital stays and surgeries, like the bone marrow biopsy and port placement surgery. So far, she has two and a half long necklaces full of beads.

This is an awesome program because it is a tangible way for her to see and show others what she has been through and how courageous she has been.
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1 comment:

Grandma, Denice said...

I can't believe Lil has almost three necklaces filled, thats amazing and sad.

July 8, 2011 at 2:18 PM

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